In early February I received a call from my doctor's nurse stating that my Western Blot test from Igenex had come back positive and that I needed to come for an appointment. Just a reminder that my previous Western Blot test from Labcorp was negative showing no IgM antibodies (which shows active infection) and only 1 IgG antibody (which is indicative of previous exposure).
My Igenex result was POSITIVE! Showing 2 IgM antibodies and 3 IgG antibodies. Based on my clinical signs and symptoms and the lab, my physician has now officially diagnosed me with Lyme Disease!
We discussed my options and the idea of being referred to a Lyme Specialist (LLMD), the closest of which was in Missouri. And my physician was sure to inform me that although he did have some knowledge of Lyme Diseases, he had no direct experience in treating the disease and that he has previously referred several of his patients to the specialist. Based on the research I had done, I felt "fairly" confident in what my course of medical therapy should be and we discussed this openly. Because of the distance involved in traveling to see the specialist, along with the fact that Lyme Specialist do not accept insurance due to the politics and controversy that Chronic Lyme does not exist, he "cautiously" agreed to continue to treat me with some reservation and concern for his practice. (We both know that many physicians have lost their medical license over choosing to treat Chronic Lyme with long term antibiotics.) We will take this one day at a time and cross that road if necessary! I pray for both of us that doesn't happen.
I had already been on Doxyclycline 100mg twice a day for 2 months and although my arthritis symptoms had improved other symptoms such as muscle aches, chronic fatigue and memory fog had worsened. All information indicated this dosage was not high enough to kill the organism in the blood and tissue. The recommended dosages of Doxycline to treat Lyme is 400-600mg / day. We decided that I would increase my dosage to 400mg daily and, in addition, he added a cephalosporin antibiotic called Cefdinir. With both of these medications we would now be attacking both the spirochete (in the blood and tissues) form of the organism and the L-form (inside the cells). After a few weeks, if I tolerate both of these, we will add the third and final group of antibiotics.....Flagyl.....the "cyst buster". It takes ALL 3 groups of antibiotics to kill the 3 different forms of the organism! If you dont treat all forms, the organism simply transforms itself and moves into a space where the antibiotic is not effective. And then when the antibiotic is stopped, it changes back to bring havoc to the body once again!
I am relieved that I am FINALLY on a treatment plan after 14 months of uncertainty! I still have not forgotten about my reaction to the H1N1 flu vaccine and how this has played a role in me getting Lyme Disease. My research on this continues on!
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